Ben's Followup with the Nephrologist

Yesterday we headed back to Columbus for a follow up from Benjamin's hospital stay. We met with his nephrologist.   

The results of that visit were that they are upping the new blood pressure med to 5ml per day instead of 2.5. They are keeping him on the 2 other medications as well. His blood pressures continue to be on the high side even with his medications (think 120-135 for the top number, which is what they primarily focus on with kids. They would like the top number to be close to or under 110). He still has blood and protein showing up in his urine (although not visible to the naked eye like it was when he was in the hospital). They sent him down to the lab to do some blood work to check his levels as when he was in the hospital his bloodwork was showing that he was slightly anemic. They also are sending his urine for a 24-48 hour test to do some more in-depth testing. 

Dr. Patel said that he thinks that the testing will show the numbers are improving but he wants to make sure. If they show what he thinks they will show then we will see him in August. If they show something else then we will get a phone call and will see what the next steps are. 

Ben was a trooper. He hated getting the blood drawn (they had to take 3 vials) but the nurse was wonderful with him and she did a great job doing it quickly and efficiently. 

On the way home we stopped at McDonald's as a treat for him as it was after lunch time. He was happy with that. 

Overall, he is doing better. You wouldn't know it to look at him that we are dealing with these blood pressure and kidney issues. I am hoping and praying that the extended tests will come back with numbers going down and that we can get these blood pressures to come down and stay down. 

Thank you again to everyone who has reached out with prayers. I really do appreciate them.